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Board of Directors
Marc Miller
Director, Co-President, Treasurer & Secretary
Robin Miller
Director, Co-President
Sidney Miller
Director, Chairman
Youth Advisory Board
• Julia Adwar |
• Brendan Brotman |
• Alex Miller |
• Jordan Rosenberg |
resources
Dystonia Medical Research Foundation
National Institute of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS)
National Spasmodic Dysphonia Association
Tyler’s Hope for a Dystonia Cure
Dystonia patient registries
Patient registries help researchers better understand dystonia by collecting information directly from volunteers who are diagnosed. Individuals are encouraged to consider participating:
Global Dystonia Registry
The goal of the Global Dystonia Registry is to support dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia.. CDN is proud to support the Global Dystonia Registry.
Dystonia International Patient Registry (DiPR)
The DMRF is partnering with Tyler's Hope for a Dystonia Cure in support of this registry which focuses on DYT1 dystonia