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Board of Directors

Marc Miller
Director, Co-President, Treasurer & Secretary

Robin Miller
Director, Co-President

Sidney Miller
Director, Chairman

 

Youth Advisory Board

• Julia Adwar
• Mikaela Adwar
• Kyle Basis
• Sydney Basis
• Brooke Bolnick
• Jeffrey Bolnick
• Casey Brand
• Amanda Braunstein
• Hallie Braunstein
• Andrew Brotman

• Brendan Brotman
• Max Brotman
• Kelsey Clifford
• Allie Gold
• Rachel Gold
• Adam Katz
• Samantha Katz
• Jonah Landow
• Noah Landow
• Aiden Miller

• Alex Miller
• Camryn Miller
• Jake Miller
• Jordyn Miller
• Justin Miller
• Lizzy Miller
• Riley Miller
• Parker Needleman
• Phoebe Palmyra
• Jacob Rosenberg

• Jordan Rosenberg
• Joshua Rosenberg
• Bria Ryan
• Nicola Ryan
• Paul Ryan
• Aaron Shapiro
• Daniel Shapiro
• Noah Warren

 

 

resources

Dystonia Coalition

Dystonia Medical Research Foundation

National Institute of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS)

National Spasmodic Dysphonia Association

Tyler’s Hope for a Dystonia Cure

 

Dystonia patient registries

Patient registries help researchers better understand dystonia by collecting information directly from volunteers who are diagnosed. Individuals are encouraged to consider participating:

 

Global Dystonia Registry
The goal of the Global Dystonia Registry is to support dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia.. CDN is proud to support the Global Dystonia Registry.

 

Dystonia International Patient Registry (DiPR)
The DMRF is partnering with Tyler's Hope for a Dystonia Cure in support of this registry which focuses on DYT1 dystonia


Grateful Acknowledgement

We gratefully acknowledge the Dystonia Coalition, Tyler’s Hope and in particular the DMRF for all the assistance and guidance provided and which they continue to provide, which has permitted us to not expend resources duplicating the outstanding work they perform.

donations

  • Your gift to Cure Dystonia Now will fund research toward more and/or improved treatments, and ultimately a cure, for Dystonia. We welcome and appreciate donations of any amount. Donations to Cure Dystonia Now are tax deductible as allowable by law.
  • Click here to learn more.

contact us

Cure Dystonia Now
201 Old Country Road, Suite 205
Melville, NY 11747
Office: (516) 584-4156
Email: info@curedystonianow.org